Sleep? Who Needs Sleep?

It seems that Josephine likes to keep Mommy and Daddy awake throughout the night…keeping us on our toes, I suppose.

But seriously, the trials and tribulations of getting this girl to sleep – outrageous.  If we would let her, Josephine would cry for 2 hours straight while in her crib, rather than fall asleep, like most children her age.  Then again, what is “Normal for Josephine”…

We are having some issues with middle of the night feedings over the past two weeks.  Mitch Bentler (Nutritionist Extraordinaire) said she was doing great, as long as she didn’t wake up to eat in the middle of night.  OKAY…so now what?  I am calling Mitch on Monday to find out the next step.  Do we need to increase formula intake before bed?  Increase caloric intake whenever we can?

I have read that other Tetrasomy 8p kids have difficulty sleeping, even to the point that one of them must be sedated for 5 hours at night in order to get a decent rest.

So, is this another symptom or just a kid fighting sleep?

On to the next bit of research…

Nutrition and Weight Gain

On a recent trip to see the gastroenterologist, Dr. Francis Sunaryo, the doctor suggested seeing a nutritionist to boost caloric intake to improve Josephine’s weight gain.  She was 13 lbs., 13 oz.  The blood work came back clear and healthy, so no worries about Celiac Disease, thyroid disorders or pancreatic concerns.  Which leads us to the nutritionist…

“Mitch” Bentler was pleased with the amount of food Josephine is eating.  But steps need to be taken to increase her weight.  Two weeks after the visit with the gastroenterologist, Josephine weighed 13 lbs., 12 oz., a 1 ounce loss.  Some suggestions were to concentrate the formula and add olive oil (1 teaspoon) to every meal.  Another possible concern is that because I make most of her food, Josephine gets very little fat in her diet.  I always thought making baby food was the best way to go.  And that would be true if Josephine had no disorder.  So, it seems Gerber will get new customers soon!

“Mitch” asked to see Josephine again in 6 weeks and I look forward to seeing a nice weight gain!