Josephine’s 1st ER visit

Well, Friday started out as any old day and then dinner came along.  We all sat down for a relaxing meal and noticed Josephine started moving her head left to right in a repetitive motion.  My mom noticed Josephine had been looking at the dining room light just before the movements.  We waited and observed for about 15 minutes and saw the same thing occur again.  And again.  After brief discussion, we decided to call the neurologist, Dr. Bojko, to alert her of the situation.

The on-call doc told us to take Josephine to the ER, which we did without too much panic.  We didn’t want Little Sheldon to worry.

The ER staff was amazing!  They whisked us in quickly and we were seen by the attending pediatrician within 20 minutes.  After consultation with Dr. Bojko, Josephine was admitted for another EEG test.  The difference is this time the doctors will monitor her with a video camera so the movements can be captured on camera as well on electronically on the EEG machine.  Updates to follow…

Nutrition and Weight Gain

On a recent trip to see the gastroenterologist, Dr. Francis Sunaryo, the doctor suggested seeing a nutritionist to boost caloric intake to improve Josephine’s weight gain.  She was 13 lbs., 13 oz.  The blood work came back clear and healthy, so no worries about Celiac Disease, thyroid disorders or pancreatic concerns.  Which leads us to the nutritionist…

“Mitch” Bentler was pleased with the amount of food Josephine is eating.  But steps need to be taken to increase her weight.  Two weeks after the visit with the gastroenterologist, Josephine weighed 13 lbs., 12 oz., a 1 ounce loss.  Some suggestions were to concentrate the formula and add olive oil (1 teaspoon) to every meal.  Another possible concern is that because I make most of her food, Josephine gets very little fat in her diet.  I always thought making baby food was the best way to go.  And that would be true if Josephine had no disorder.  So, it seems Gerber will get new customers soon!

“Mitch” asked to see Josephine again in 6 weeks and I look forward to seeing a nice weight gain!